Rare kidney diseases: CL3AR campaign starts in Milan (cross-border guide)
The CL3AR traveling campaign aims to raise awareness about kidney health, focusing on rare chronic diseases such as C3G and primary IC-MPGN.
Contesto
In brief - 44% of patients with rare kidney diseases wait over a year for an accurate diagnosis. - The CL3AR campaign starts in Milan to raise awareness about kidney health. - Rare chronic kidney diseases are often silent and difficult to diagnose. ## Key facts - What: Awareness campaign on kidney health. - When: Initiative started on May 4, 2026. - Where: Milan, with possible stops in other cities. - Who: Promoted by Sobi Italia with the patronage of Progetto DDD ETS, FIR, SINEPE, and SIP. - Amount: 44% of patients wait over a year for a diagnosis. 44% of people with a rare kidney disease have had to wait over a year to receive an accurate diagnosis. This alarming figure has led to the creation of the itinerant campaign 'CL3AR: clear goals for the health of your kidneys,' a project by Sobi Italia with the patronage of Progetto DDD ETS, FIR, SINEPE, and SIP. The initiative aims to highlight the importance of kidney health, often underestimated. Chronic kidney diseases, especially rare ones like C3 glomerulopathy (C3G) and primary immune-complex membranoproliferative glomerulonephritis (IC-MPGN), are often insidious as they are invisible and silent in the early stages of the disease. ### The complexity of diagnosis Due to their low prevalence and the wide variety of triggering factors, these pathologies are particularly complex to identify. Delay in diagnosis can lead to silent progression towards renal failure, losing the opportunity for early intervention. 'Rare kidney diseases like C3G and primary IC-MPGN represent a complex clinical challenge, starting with the difficulty of recognizing them promptly and continuing with the management of often fragmented therapeutic pathways. Early diagnosis is a crucial step: knowing how to catch some signs in urine and blood tes...
Dettagli operativi
The CL3AR campaign represents a fundamental step in improving the quality of life for patients affected by rare chronic kidney diseases. Early diagnosis is crucial to slowing the progression of the disease and preventing serious complications. Patients often are not aware of the initial symptoms, which can be mild or absent, making timely diagnosis difficult. The campaign aims to educate patients and their families about the signs and symptoms of rare chronic kidney diseases, encouraging them to consult a doctor at the first suspicion. ### The importance of awareness Awareness is fundamental to improving the understanding of rare chronic kidney diseases. The CL3AR campaign promotes the importance of early diagnosis and adequate treatment, providing detailed information on rare chronic kidney diseases and reference centers for diagnosis and treatment. The campaign also includes educational and informative events, such as conferences, workshops, and seminars, to engage patients, their families, and healthcare professionals. ### Implications for cross-border workers Cross-border workers who work in Ticino and reside in Italy can benefit from the CL3AR campaign. Awareness of kidney health is important for everyone, regardless of place of residence. Cross-border workers can participate in the educational and informative events organized by the campaign, obtaining valuable information about kidney health and reference centers for the diagnosis and treatment of rare chronic kidney diseases. The CL3AR campaign represents an opportunity for cross-border workers to improve their awareness of kidney health and to access useful resources for the diagnosis and treatment of rare chronic kidney diseases. ## Recommended tools For an updated estimate, use the net salary calculator an...
Punti chiave
For cross-border workers who wish to participate in the CL3AR campaign, it is important to stay updated on the dates and locations of the events. The itinerant campaign will start in Milan and may include stops in other Italian cities. Cross-border workers can visit the campaign's website to obtain updated information on the events and reference centers for the diagnosis and treatment of rare chronic kidney diseases. ### Concrete steps for cross-border workers 1. Inform yourself: Visit the CL3AR campaign website to get updated information on events and reference centers. 2. Participate: Attend the educational and informative events organized by the campaign. 3. Consult a doctor: Consult a doctor at the first suspicion of symptoms related to rare chronic kidney diseases. 4. Access resources: Use the resources provided by the campaign to obtain detailed information on rare chronic kidney diseases and reference centers for diagnosis and treatment. ### Useful tools Cross-border workers can use the kidney health calculator to monitor their kidney health and receive personalized advice. Additionally, they can consult the reference center comparator to find the nearest diagnosis and treatment centers. The CL3AR campaign represents an important opportunity for cross-border workers to improve their awareness of kidney health and access useful resources for the diagnosis and treatment of rare chronic kidney diseases. Participating in the educational and informative events organized by the campaign can make a difference in managing kidney health and quality of life. Source: video.corriere.it
Punti chiave
[{"q":"What is the main objective of the CL3AR campaign?","a":"The main objective of the CL3AR campaign is to raise public awareness and educate healthcare professionals about the importance of early diagnosis and adequate treatment of rare chronic kidney diseases, such as C3 glomerulopathy (C3G) and primary immune-complex membranoproliferative glomerulonephritis (IC-MPGN)."},{"q":"How can I participate in the CL3AR campaign?","a":"You can participate in the CL3AR campaign by visiting the official website to get updated information on events and reference centers. You can also attend the educational and informative events organized by the campaign, such as conferences, workshops, and seminars."},{"q":"What are the symptoms of rare chronic kidney diseases?","a":"The symptoms of rare chronic kidney diseases can vary, but they often include changes in urine, fatigue, swelling, and high blood pressure. It is important to consult a doctor at the first suspicion of symptoms related to these diseases."}]
Frequently Asked Questions
- What is the main objective of the CL3AR campaign?
- The main objective of the CL3AR campaign is to raise public awareness and educate healthcare professionals about the importance of early diagnosis and adequate treatment of rare chronic kidney diseases, such as C3 glomerulopathy (C3G) and primary immune-complex membranoproliferative glomerulonephritis (IC-MPGN).
- How can I participate in the CL3AR campaign?
- You can participate in the CL3AR campaign by visiting the official website to get updated information on events and reference centers. You can also attend the educational and informative events organized by the campaign, such as conferences, workshops, and seminars.
- What are the symptoms of rare chronic kidney diseases?
- The symptoms of rare chronic kidney diseases can vary, but they often include changes in urine, fatigue, swelling, and high blood pressure. It is important to consult a doctor at the first suspicion of symptoms related to these diseases.